Online Community Group Topics

Discussion Group Comments & Questions

Do you have MS questions you want answered?

You might find the answer you are looking for right here in this section.

This section provides valuable Q & A discussion topics from various MS communities.

Also if you want to participate in any of these chat groups a link for each community is there for you to begin the sign up process!

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Managing MS Fatigue and Sleep During A Crisis: COVID-19 and Beyondhttps://www.cando-ms.org/online-resources/can-do-library/managing-ms-fatigue-and-sleep-during-a-crisis-covid-19-and-beyondwww.cando-ms.org/online-resources/can-do-library/managing-ms-fatigue-and-sleep-during-a-crisis-covid-19-and-beyond

Fatique & Sleep
https://www.cando-ms.org/multiple-sclerosis-programs/webinar-series/fatigue-and-sleep

Striving for Cognitive Wellness
https://www.cando-ms.org/multiple-sclerosis-programs/webinar-series/archives?type=cognitive-health

Achieving Emotional Wellness
https://www.cando-ms.org/online-resources/can-do-library/the-process-of-therapy

Multiple Sclerosis Support Group

www.dailystrength.org/group/multiple-sclerosis-ms

Can Apple Cider Vinegar Help Multiple Sclerosis?

https://www.everydayhealth.com/multiple-sclerosis/can-apple-cider-vinegar-help-multiple-sclerosis/?slot=0&xid=nl_EHNLms_2020-06-27_20743138&utm_source=Newsletters&nl_key=nl_living_with_multiplesclerosis&utm_content=2020-06-27&utm_campaign=Living_With_Multiple_Sclerosiswww.everydayhealth.com/multiple-sclerosis/can-apple-cider-vinegar-help-multiple-sclerosis/?slot=0&xid=nl_EHNLms_2020-06-27_20743138&utm_source=Newsletters&nl_key=nl_living_with_multiplesclerosis&utm_content=2020-06-27&utm_campaign=Living_With_Multiple_Sclerosis

MS Can Cause 'Emotional Blindness'
It would be pretty tough to navigate the world if you couldn't tell when people around you were happy, sad, or frustrated. But for many people with MS, this is a reality.

Dr. Jekyll & Mr. Hyde: MS and Mood Swings
You’re so dramatic. You try too hard. How do you stay so upbeat all the time? Why are you always so negative? You’re crazy.
http://www.msconnection.org/Blog/October-2017/Dr-Jekyll-Mr-Hyde-MS-and-Mood-Swings

Other MS Blogs

Golfing, Volunteering, Swimming, Loving, Traveling, Cooking...

All month long, we've been asking you to show us how you #KickMS for
Can Do Month. And you took action.

Hundreds of you have joined the
#KickMS movement and we thank you.

But let's keep the inspiration going.

Show us how you live passionately, raise MS awareness, and
inspire others just by sharing a photo or video of what you can do.

MS.net great short stories written by MSer'

https://multiplesclerosis.net/weekly/160302.html

Living with an Invisible Illness

Bro Hugs and Awkward Introductions

Loneliness: The Worst Effect of MS and Disability

How I Tackle Boredom Living Alone with MS

Using Physical Therapy to Stay Active

Updating the Shifting MS-COVID-19 Treatment Equation

https://multiplesclerosisnewstoday.com/columns/2020/06/23/dmts-covid-19-treatment-recommendations-guidelines/multiplesclerosisnewstoday.com/columns/2020/06/23/dmts-covid-19-treatment-recommendations-guidelines/

Online Resource Center Informs MS Patients About Treatments, Adherence

https://multiplesclerosisnewstoday.com/news-posts/2020/06/24/new-mymsteam-resource-center-educates-people-living-with-multiple-sclerosis-on-the-importance-of-treatment-and-adherence/

NICE Does Not Favor Adding Mayzent to NHS England for Active SPMS

https://multiplesclerosisnewstoday.com/news-posts/2020/06/26/nice-does-not-favor-adding-mayzent-uk-nhs-for-active-spms/

Walking Patterns of MS Patients Studied to Reduce Risk of Falling

https://multiplesclerosisnewstoday.com/news-posts/2020/06/19/research-on-multiple-sclerosis-gait-to-lead-to-more-effective-fall-prevention/

1st Relapsing MS Patient Enrolls in Phase 3 Trial of Oral SAR442168

https://multiplesclerosisnewstoday.com/news-posts/2020/06/25/first-relapsing-ms-patient-enrolls-in-phase-3-gemini-1-trial-oral-sar442168/

Spirituality may be thought of as that which gives meaning and a feeling of vitality to one’s life. When people connect with their spirituality, they feel centered, calm and energized. Spirituality is a powerful aspect of the human experience that can help fuel one’s efforts to achieve wellness in the face of life’s challenges and obstacles, including a diagnosis of MS.

Religious beliefs may or may not be central to a person’s spirituality. For some, religion is the driving force or organizing principle of their spirituality. For others, spirituality is reflected in their connection to nature, other people, art forms, or anything else that gives their lives particular meaning.

Many times in life people become aware of being on a spiritual journey, most often when confronted by a major shift or crisis. The Chinese character for crisis consists of two characters, one being for danger and the other for opportunity. Each crisis brings fears about the uncertain future but also opportunities for growth, including:

Becoming more self-aware
Discovering inner strengths and resources
Finding meaning in the challenge
Discovering greater balance, harmony and purpose
Changing feelings of powerlessness into feelings of creative strength
Finding opportunities for personal growth and increased resilience
Deepened, more meaningful relationships with others

If you imagine life as a path – and crises or challenges as detours along the way – the following resources can help you navigate the journey.

Recognizing the emotional impact
Grief is a natural reaction to loss. Whether it’s the loss of a loved one, a diagnosis of MS, a change in one’s ability function or any other disruption in one’s life path, healthy grieving is the first step toward healing. The grieving process sets the stage for goal-setting, creative problem-solving and personal growth. Identifying what drains you and sustains you
Dealing with changes and challenges takes energy. Given that fatigue is one of the most common and challenging MS symptoms, it is helpful to identify the things in your life that drain you physically and emotionally, as well as the things in your life that stimulate, fuel and replenish you.Getting your priorities in order
When energy is limited and life’s challenges seem to create endless hurdles, it is helpful to prioritize the ways you spend your energy – both physical and emotional – and time. Focusing your energies on the things that are most important to you, and most in line with your goals and personal values, is part of staying on your spiritual path.Connecting with your true self
Part of a spiritual journey is connecting with one’s true self – the self that recognizes and trust its own motives, emotions and ideas, recognizes its strengths and weaknesses, acts in ways that reflect personal values and needs, and allows true intimacy with others.Building spirituality into your life
Daily life often feels too pressured to allow time for inner reflection, awareness of feelings – our own and others’ – and personal growth. Finding and maintaining one’s spiritual self involves carving out time and space to explore, nurture and refuel one’s inner self, to focus with intention on opportunities for change and growth and to remain open to new ideas, feelings and ways of interacting with the world.Maintaining balance in your relationships
A person’s life challenges, including the unpredictable symptoms of MS, also affect close family and friends – at times altering the roles and responsibilities in a relationship, impacting shared activities, challenging intimacy, requiring a redefinition of shared plans and goals. Working to maintain balance and connection in valued relationships is part of one’s spiritual path.Additional resources
Apps

Headspace: Guided Meditation and Mindfulness
Calm: Meditation to Relax, Focus and Sleep Better

Websites

Center for Mindfulness in Medicine, Health Care and Society: general information and research about mindfulness
HelpGuide.org: information about mindfulness and tips to get you started
UCLA Health: free guided meditations
Pocket Mindfulness: simple mindfulness exercises