FOR YOUR INFORMATION...
It's important to read as much as possible to understand your MS. Be your best
information advocate. Whether your speaking about your MS with your Neuroligist,
family, friends or care-taker, you will need to use terms and facts that represent
your illness. The more you know and can communicate the more knowledge you can
share with others. There is an ample supply of information at your finger tips.
Whether it's books, magazines, newsletters, pod casts or on line chat rooms, you can
access these resources by clicking the links you'll find in this category
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MS Books
Multiple Sclerosis Foundation
http.msfocus.org/flipbook/index.html
Top Picks
Glossary of MS Books
Bad Nerves: All About MS and Stuff
Author: LJ Thomas
http://resourcecenter.msworld.org/education/educational-library/book-reviews/bad-nerves-all-about-ms-and-stuff/
DREAMS My Journey with MS
Author: Kristie Salreno Kent
http://www.dreamstheebook.com/
My The Brain That Changes Itself
Author: Norman Doidge MD, FRCP(C)
http://www.amazon.com/Brain-That-Changes-Itself-Frontiers/dp/0143113100/ref=sr_1_1?s=books&ie=UTF8&qid=1405011611&sr=1-1&keywords=the+brain+that+changes+itself+by+norman+doidge
Facing the Cognitive Side of MS
Author: Jeffrey Gingold
http://www.amazon.com/Cognitive-Challenges-Multiple-Sclerosis-
ebook/dp/B004HKIFMO/ref=sr_1_fkmr2_1?s=books&ie=UTF8&qid=1336593281&sr=1-1-fkmr2
The Questions You Have, the Answers You Need
Author: Ph.D. Rosalind C. Kalb
http://www.amazon.com/Multiple-Sclerosis-Questions-Have-Answers/dp/1936303167/ref=sr_1_1?
s=books&ie=UTF8&qid=1336593629&sr=1-1
The First Year: Multiple Sclerosis: An Essential Guide for the Newly Diagnosed
Author: M.D. Saud A. Sadiq M.D. & Margaret Blackstone
http://www.amazon.com/The-First-Year-Sclerosis-Essential/dp/1569242615/ref=la_B001HOWLSM_1_1?
ie=UTF8&qid=1336595461&sr=1-1
It's Not All In Your Head
Author: Patricia Farrell PHD
http://www.amazon.com/Its-Not-Your-Head-Sick--/dp/1572309938/ref=sr_1_1?
=books&ie=UTF8&qid=1336594169&sr=1-1
Overcoming Multiple Sclerosis: An evidence-Based Guide to Recovery
Author:Professor George Jelinek
http://www.amazon.com/Overcoming-Multiple-Sclerosis-Evidence-Based-Recovery/dp/1742371795/ref=sr_1_1?
s=books&ie=UTF8&qid=1336594633&sr=1-1
Pain Free 'A Revolutionary Method For Stopping Chronic Pain'
Author: Pete Egoscue w/ Roger Gittines
http://www.amazon.com/Pain-Free-Revolutionary-Stopping-Chronic/dp/0553379887/ref=sr_1_1?
s=books&ie=UTF8&qid=1336594329&sr=1-1
Won't Do Stand-up In A Wheelchair; A M.S. Recovery Story
Author: Sandi Selvi
http://www.amazon.com/Wont-Do-Stand-Up-Wheelchair-Recovery/dp/1936214105#reader_1936214105
Multiple Sclerosis Foundation
http.msfocus.org/flipbook/index.html
Top Picks
- Slideshow: Get the Basics on Multiple Sclerosis
- Your Guide to Looking & Feeling Good With MS
- Treatment Options for Your Type of MS
- 12 Ways to Exercise Your Brain
- How Is a Diagnosis of Multiple Sclerosis Made?
Glossary of MS Books
- Signs of Multiple Sclerosis Relapse Slideshow
- How Well Are You Managing Your Multiple Sclerosis? Take the MS Health Check to find out.
- What is multiple sclerosis?
- Primary Progressive MS: Symptoms and Treatment
- Secondary Progressive MS: Symptoms and Treatment
- Multiple Sclerosis and Diet
- Understanding the Different Types of Multiple Sclerosis
- See All MS Alternative Treatments Topics
Bad Nerves: All About MS and Stuff
Author: LJ Thomas
http://resourcecenter.msworld.org/education/educational-library/book-reviews/bad-nerves-all-about-ms-and-stuff/
DREAMS My Journey with MS
Author: Kristie Salreno Kent
http://www.dreamstheebook.com/
My The Brain That Changes Itself
Author: Norman Doidge MD, FRCP(C)
http://www.amazon.com/Brain-That-Changes-Itself-Frontiers/dp/0143113100/ref=sr_1_1?s=books&ie=UTF8&qid=1405011611&sr=1-1&keywords=the+brain+that+changes+itself+by+norman+doidge
Facing the Cognitive Side of MS
Author: Jeffrey Gingold
http://www.amazon.com/Cognitive-Challenges-Multiple-Sclerosis-
ebook/dp/B004HKIFMO/ref=sr_1_fkmr2_1?s=books&ie=UTF8&qid=1336593281&sr=1-1-fkmr2
The Questions You Have, the Answers You Need
Author: Ph.D. Rosalind C. Kalb
http://www.amazon.com/Multiple-Sclerosis-Questions-Have-Answers/dp/1936303167/ref=sr_1_1?
s=books&ie=UTF8&qid=1336593629&sr=1-1
The First Year: Multiple Sclerosis: An Essential Guide for the Newly Diagnosed
Author: M.D. Saud A. Sadiq M.D. & Margaret Blackstone
http://www.amazon.com/The-First-Year-Sclerosis-Essential/dp/1569242615/ref=la_B001HOWLSM_1_1?
ie=UTF8&qid=1336595461&sr=1-1
It's Not All In Your Head
Author: Patricia Farrell PHD
http://www.amazon.com/Its-Not-Your-Head-Sick--/dp/1572309938/ref=sr_1_1?
=books&ie=UTF8&qid=1336594169&sr=1-1
Overcoming Multiple Sclerosis: An evidence-Based Guide to Recovery
Author:Professor George Jelinek
http://www.amazon.com/Overcoming-Multiple-Sclerosis-Evidence-Based-Recovery/dp/1742371795/ref=sr_1_1?
s=books&ie=UTF8&qid=1336594633&sr=1-1
Pain Free 'A Revolutionary Method For Stopping Chronic Pain'
Author: Pete Egoscue w/ Roger Gittines
http://www.amazon.com/Pain-Free-Revolutionary-Stopping-Chronic/dp/0553379887/ref=sr_1_1?
s=books&ie=UTF8&qid=1336594329&sr=1-1
Won't Do Stand-up In A Wheelchair; A M.S. Recovery Story
Author: Sandi Selvi
http://www.amazon.com/Wont-Do-Stand-Up-Wheelchair-Recovery/dp/1936214105#reader_1936214105
MS Magazines
National MS Society-Momentum Magazine
http://www.momentummagazineonline.com/
MS Focus
http://eflip.msfocus.org/
MS Lifeline
http://www.mslifelines.com/pages/news-and-events/msll_magazine
MS Blogger Survey
An integral part of the online MS community tells us how they navigate the vast sea of MS
information online.
View as PDF
Marijuana and MS
What have clinical studies shown about safety and effectiveness?
View as PDF
Stories from "We Keep Moving"
The Society sent a team of videographers around the country to capture stories about how life with MS
is really lived.
View as PDF
Mobility Alert:
Shoes--mobility at your feet
View as PDF
Inbox
On My Mind: Purpose and direction for the Society's next moves
View as PDF
MS WORLD
http://www.msworld.com
Neurology Now
http://journals.lww.com/neurologynow/pages/default.aspx
Real Living with MS
http://www.magazines.com/product/real-living-with-multiple-sclerosis
MS Newsletters
Every Day Health
http://www.everydayhealth.com/multiple-sclerosis-basics.aspx
Multiple Sclerosis Foundation-MS Focus
http://www.msfocus.org/magazinesnewsletters.aspx
National MS Society-MS Connection Quarterly Newsletter
http://www.nationalmssociety.org/Chapters/MAM/Stay-Informed/MS-Connection-Newsletter
Patients Like Me-Newsletters
https://www.patientslikeme.com/newsletters
WebMD
http://www.webmd.com/multiple-sclerosis/your-best-life-11/default.htm
MS Patient Article
My MS Cognitive Reality by Chris Noellert-leader of the MS Invincibles support group
The cognitive effects of MS are often over looked and under discussed with our MS Doctors. For MS patients like me it's a good news/bad news reality. Our brains aren't displayed with a cane, wheel chair or scooter. Having invisible symptoms on the outside might make us feel and seem well "stuck on stupid" an MS term we use.
A tolerable acceptance strategy I use is laughing instead of crying for myself. Often non-MS folks seem to nervously chime in with your laughter. Kind of like a Lucille Ball moment! Just call me Lucy!!
I had a Neuropschye evaluation last year. Boy was that a big pill to swallow! I felt like I was back in grade school knowing full well that I was failing the test! It was undeniably a pathetic episode for me!! Having been a smart person in my previous life (BMS-before MS) has brought my brain dysfunction right to the surface. That was a true test of my denial skills. I kept waiting for his unavoidable facial reaction.
The Visual:
The Neuropschye standing up with all my evaluation papers in tow saying (in slow motion) I think we're done here. Your mental capacity is...well so... compromised with your MS!! Making peace with that reality was very, very difficult for me! I decided in that moment that laughing instead of crying about myself will be my chosen coping method!
Screw everyone who doesn't understand what it's like to have your brain power slowly diminish!! At least when I do the on-line brain scramble games I'm all by myself and can marinate in the reality of how things are changing for me.
On a brighter side, I must remember that I'm not dying from MS. A problem free life is promised to no one! Everyone faces challenges in their life. (physical, emotional, medical, relationships, financial, etc) Looks like MS is the challenge I got! Why?
It must be that I had to learn this particular lesson. Imagine if you had no challenges in your life! No challenging experiences to learn from! Imagine if your spirit life form kept sending you back with the same issue to deal with?
As someone who believes that in each lifetime you must learn how to handle certain challenges, I don't know but for me one lifetime of this MS crap is enough. Is this my new life form with MS because I didn’t get the lesson the last time round?
Who knows? My MS life is what it is!
OK then maybe I should throw out of my "pity stew" and start over. You know, add the good ingredients this life has given to me.
I'm privileged to know that my perspective on my MS "Life Challenge" strikes a chord with other MSer’s. I've spent a lot of time trying to rationalize my illness. This chosen perspective makes sense to me and has helped me to understand the "WHY?" factor. I feel that everything that happens in life has a reason and a purpose. You just need to figure that out for yourself.
What has helped me the most is starting my own local MS Support group last November 2010. We are called the MS Invincibles in Northern Nevada. Our members are all heroes in their own way. I wanted to create this support group that operated the attitude of "now what?" after our MS diagnosis.
I have attended several other local support group meetings since I’ve was diagnosed with MS in 2003. I always ended up being more depressed when the meeting was over.
Honestly they were structured like another certain meeting format I've heard about.
Scene: Everyone sitting around a large table discussing how this MS illness has ruined their life and the sacrifices they've had to make "Hi my name is ______ and I have MS. It was like attending a pity party...with out any balloons! It was not OK with me to proceed with that kind of attitude. My attitude is more like "yes I have MS and now I want to move forward with my life please”.
For that reason, I'm very particular and guarded with the MS Invincibles group members. I made a pledge to only add members who are positive and ready to move on with their life! I have 28 full time members now who are fully committed to the principles of our group mission.
I invite featured speakers to each of our monthly meeting. These presenters all offer a valuable service to sour members. No drug reps. pitching their product is allowed! These speakers are representatives of companies who offer valuable MS services and resources that assist our members in living their best life with MS.
I also created an MS Invinciples resource web site (msinvincibles.org) that is loaded with important information links within 28 MS categories. The site features information and answers to many MS questions.
This is a chosen path for me. Helping others with MS! When I help others it gives me a responsibility to others and takes me out of my own MS box. I feel great about what I have created and knowing it helps others MSer's like me!
Every Day Health
http://www.everydayhealth.com/multiple-sclerosis-basics.aspx
Multiple Sclerosis Foundation-MS Focus
http://www.msfocus.org/magazinesnewsletters.aspx
National MS Society-MS Connection Quarterly Newsletter
http://www.nationalmssociety.org/Chapters/MAM/Stay-Informed/MS-Connection-Newsletter
Patients Like Me-Newsletters
https://www.patientslikeme.com/newsletters
WebMD
http://www.webmd.com/multiple-sclerosis/your-best-life-11/default.htm
MS Patient Article
My MS Cognitive Reality by Chris Noellert-leader of the MS Invincibles support group
The cognitive effects of MS are often over looked and under discussed with our MS Doctors. For MS patients like me it's a good news/bad news reality. Our brains aren't displayed with a cane, wheel chair or scooter. Having invisible symptoms on the outside might make us feel and seem well "stuck on stupid" an MS term we use.
A tolerable acceptance strategy I use is laughing instead of crying for myself. Often non-MS folks seem to nervously chime in with your laughter. Kind of like a Lucille Ball moment! Just call me Lucy!!
I had a Neuropschye evaluation last year. Boy was that a big pill to swallow! I felt like I was back in grade school knowing full well that I was failing the test! It was undeniably a pathetic episode for me!! Having been a smart person in my previous life (BMS-before MS) has brought my brain dysfunction right to the surface. That was a true test of my denial skills. I kept waiting for his unavoidable facial reaction.
The Visual:
The Neuropschye standing up with all my evaluation papers in tow saying (in slow motion) I think we're done here. Your mental capacity is...well so... compromised with your MS!! Making peace with that reality was very, very difficult for me! I decided in that moment that laughing instead of crying about myself will be my chosen coping method!
Screw everyone who doesn't understand what it's like to have your brain power slowly diminish!! At least when I do the on-line brain scramble games I'm all by myself and can marinate in the reality of how things are changing for me.
On a brighter side, I must remember that I'm not dying from MS. A problem free life is promised to no one! Everyone faces challenges in their life. (physical, emotional, medical, relationships, financial, etc) Looks like MS is the challenge I got! Why?
It must be that I had to learn this particular lesson. Imagine if you had no challenges in your life! No challenging experiences to learn from! Imagine if your spirit life form kept sending you back with the same issue to deal with?
As someone who believes that in each lifetime you must learn how to handle certain challenges, I don't know but for me one lifetime of this MS crap is enough. Is this my new life form with MS because I didn’t get the lesson the last time round?
Who knows? My MS life is what it is!
OK then maybe I should throw out of my "pity stew" and start over. You know, add the good ingredients this life has given to me.
I'm privileged to know that my perspective on my MS "Life Challenge" strikes a chord with other MSer’s. I've spent a lot of time trying to rationalize my illness. This chosen perspective makes sense to me and has helped me to understand the "WHY?" factor. I feel that everything that happens in life has a reason and a purpose. You just need to figure that out for yourself.
What has helped me the most is starting my own local MS Support group last November 2010. We are called the MS Invincibles in Northern Nevada. Our members are all heroes in their own way. I wanted to create this support group that operated the attitude of "now what?" after our MS diagnosis.
I have attended several other local support group meetings since I’ve was diagnosed with MS in 2003. I always ended up being more depressed when the meeting was over.
Honestly they were structured like another certain meeting format I've heard about.
Scene: Everyone sitting around a large table discussing how this MS illness has ruined their life and the sacrifices they've had to make "Hi my name is ______ and I have MS. It was like attending a pity party...with out any balloons! It was not OK with me to proceed with that kind of attitude. My attitude is more like "yes I have MS and now I want to move forward with my life please”.
For that reason, I'm very particular and guarded with the MS Invincibles group members. I made a pledge to only add members who are positive and ready to move on with their life! I have 28 full time members now who are fully committed to the principles of our group mission.
I invite featured speakers to each of our monthly meeting. These presenters all offer a valuable service to sour members. No drug reps. pitching their product is allowed! These speakers are representatives of companies who offer valuable MS services and resources that assist our members in living their best life with MS.
I also created an MS Invinciples resource web site (msinvincibles.org) that is loaded with important information links within 28 MS categories. The site features information and answers to many MS questions.
This is a chosen path for me. Helping others with MS! When I help others it gives me a responsibility to others and takes me out of my own MS box. I feel great about what I have created and knowing it helps others MSer's like me!