Read What the Media is Saying about MS....
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What Causes Cognitive Dysfunction?
Click link above for full story
Everyone living with MS knows that mobility challenges are just small part of the challenges we face, Multiple sclerosis also causesmany invisible symptoms that many of us are all too familiar wiincluding (but certainly not limited to) difficulty thinking, or cognitive dysfunction. More than 65% of people with MS have difficulty with cognition. The most common cognitive symptoms in people living with MS include trouble with short term memory, attention, multi-tasking, word finding, and “executive functions” which include planning, prioritizing, and organizing.
Dietary Supplements for MS
Have you considered taking a selection of vitamins, minerals and herbs in the context of MS?
https://www.acceleratedcure.org/sites/default/files/images/CanDietarySupplementsHelpMS.v2docx.pdfwww.acceleratedcure.org/sites/default/files/images/CanDietarySupplementsHelpMS.v2docx.pdf
MSIF Issues New Recommendations to Protect Against COVID-19
The Multiple Sclerosis International Federation (MSIF) has issued new recommendations about how people with MS should adjust their daily lives because of the coronavirus pandemic.
aHSCT Gets a Boost in US With NMSS Recommendations
That’s because the National Multiple Sclerosis Society has slightly changed its view of autologous hematopoietic stem cell transplantation, or aHSCT.aHSCT involves removing a patient’s own stem cells from the blood or bone marrow, using chemotherapy to kill off most of the immune system, and then injecting the stem cells back into the patient. Those stem cells regenerate the immune system, hopefully without any of the rogue immune cells that attack the nervous system and create MS symptoms.
Nerve Cell Damage May Be Evident Years Before Symptoms Are Recognized Damage to nerve cells appears to occur years before people with multiple sclerosis (MS) begin to show symptoms and is evident in a likely biomarker, Researchers found raised levels of neurofilament light chain (NfL), a protein associated with nerve cell damage, in blood samples collected six years before individuals were diagnosed with MS.
https://multiplesclerosisnewstoday.com/news-posts/2019/09/10/ectrims2019-talk-284-serum-neurofilament-light-chain-as-a-presymptomatic-biomarker-in-multiple-sclerosis/?utm_source=Multiple+Sclerosis&utm_campaign=f71a72aa64-RSS_US_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_b5fb7a3dae-f71a72aa64-7131015
**Comcast News discusses Multiple Sclerosis
http://www.foxnews.com/opinion/2014/02/25/yes-have-ms-my-life-with-multiple-sclerosis/
**MS Invincibles Article
My Cognitive Reality-written by: Chris Noellert-Group Leader
The cognitive effects of MS are often over looked and under discussed with our MS Doctors. For MS patients
like me it's a good news/bad news reality. Our brains aren't displayed with a cane, wheel chair or scooter. Having
invisible symptoms on the outside might make us feel and seem well "stuck on stupid" an MS term we use.
A tolerable acceptance strategy I use is laughing instead of crying for myself. Often non-MS folks seem to
nervously chime in with your laughter. Kind of like a Lucille Ball moment!
I had a Neuropschye evaluation last year. Boy was that a big pill to swallow! I felt like I was back in grade
school knowing full well that I was failing the test! It was undeniably a pathetic episode for me!! Having been a
smart person in my previous life(BMS-before MS) has brought my brain dysfunction right to the surface. That
was a true test of my denial skills. I kept waiting for his unavoidable facial reaction.
The Visual:
The Neuropschye standing up with all my evaluation papers in tow saying(in slow motion) "I think we're done
here. Your mental capacity is...well so... deteriorated"!! Making peace with that reality was very, very difficult
for me! I decided in that moment that laughing instead of crying about myself will be my chosen coping
method ! Screw everyone who doesn't understand what it's like to have your brain power slowly diminish!! At
least when I do the on-line brain scramble games I'm by myself and can marinate in the reality of how things
are changing for me.
On a brighter side, I must remember that I'm not dying from MS. A problem free life is promised to no one!
Everyone faces challenges in their life. (physical, emotional, medical, relationships, financial, etc) Looks like MS
is the challenge I got! Why?
It must be that I had to learn this particular lesson. Imagine if you had no challenges in your life! No challenging
experiences to learn from! Imagine if your spirit life form kept sending you back with the same issue to deal
with?
As someone who believes that in each lifetime you must learn how to handle certain challenges, I don't know
but for me one lifetime of this MS torture is enough. Is this my new life form with MS because I didn’t get the l
lesson the last time round?
Who knows? My MS life is what it is!
Maybe I should throw out of my "pity stew" and start over. You know, add the good ingredients this life has
given to me.
I'm privileged to learn that my perspective on my MS "Life Challenge" strikes a chord with other MSer’s. I've
spent a lot of time trying to rationalize my illness. This chosen perspective makes sense to me and has helped me
to understand the "WHY?" factor.
I've always felt that everything that happens in your life happens for a reason and a purpose. You just need to
figure that out for yourself.
What has helped me the most is starting my own local MS Support group last November. We call ourselves the
MS Invincibles located in in Northern Nevada. Our members are all heroes in their own way. I wanted to
create this support group that operated the attitude of "OK, now what?" after our MS diagnosis.
How I developed my group format came from attending other MS local support group meetings over the past
few years since I was diagnosed with MS in 2003. The reality was I found myself always more depressed
when the meeting ended.
Here's the meeting scene:
MSer's sitting around a large table discussing how their MS illness has ruined their life and about all the
sacrifices they've had to make "Hi my name is ______ and I have MS. It was like attending a pity
party...without any balloons! It was NOT OK with me to proceed in life with that kind of attitude.
My attitude was more like "Yes I have this MS disease and now I want to move forward with my life please”.
I'm very particular and guarded with the MS Invincibles group members. I made a pledge to only add members
who are positive and ready to move on with their life! I have 28 full time members now who are fully
committed to the principles of our group mission . I invite featured speakers to each monthly meeting. These
presenters all offer a valuable service to our members. No drug reps. pitching their medications are allowed!
The speakers are representatives of companies who offer valuable MS services and resources that assist our
members in living their best life with MS.
I also created an MS Invincibles resource web site (msinvincibles.org) in January 2012. The site is easy to
navigate through and is loaded with information links ranging in 28 MS topic categories. The site features
information and answers to many MS questions.
This is a chosen path for me. Helping others with MS! When I help others it gives me a responsibility to others
and takes me out of my own MS box. I feel great about what I have created and knowing it helps other
MSer's like me!
Jack Osborne Diagnosed With MS
http://www.people.com/people/article/0,,20604748,00.html
Risk of Cancer Lower in MS Patients
http://www.medicalnewstoday.com/releases/246945.php
The Progression of MS Unaffected By Active Ingredient of Cannabis
http://www.medicalnewstoday.com/releases/246684.php
Jonah Chan - Final
Http://myelinrepair.org/documents/Jonah_Chan_Final.pdfMarijuana May Relieve MS Symptoms
http://www.medicalnewstoday.com/articles/245424.php
Growth Factor In Stem Cell May Spur Recovery From MS
http://www.medicalnewstoday.com/releases/245660.php
Stem Cell Therapy Shows Prospects for Severe Neurological Diseases
http://www.medicalnewstoday.com/releases/246464.php
What Causes Cognitive Dysfunction?
Click link above for full story
Everyone living with MS knows that mobility challenges are just small part of the challenges we face, Multiple sclerosis also causesmany invisible symptoms that many of us are all too familiar wiincluding (but certainly not limited to) difficulty thinking, or cognitive dysfunction. More than 65% of people with MS have difficulty with cognition. The most common cognitive symptoms in people living with MS include trouble with short term memory, attention, multi-tasking, word finding, and “executive functions” which include planning, prioritizing, and organizing.
Dietary Supplements for MS
Have you considered taking a selection of vitamins, minerals and herbs in the context of MS?
https://www.acceleratedcure.org/sites/default/files/images/CanDietarySupplementsHelpMS.v2docx.pdfwww.acceleratedcure.org/sites/default/files/images/CanDietarySupplementsHelpMS.v2docx.pdf
MSIF Issues New Recommendations to Protect Against COVID-19
The Multiple Sclerosis International Federation (MSIF) has issued new recommendations about how people with MS should adjust their daily lives because of the coronavirus pandemic.
aHSCT Gets a Boost in US With NMSS Recommendations
That’s because the National Multiple Sclerosis Society has slightly changed its view of autologous hematopoietic stem cell transplantation, or aHSCT.aHSCT involves removing a patient’s own stem cells from the blood or bone marrow, using chemotherapy to kill off most of the immune system, and then injecting the stem cells back into the patient. Those stem cells regenerate the immune system, hopefully without any of the rogue immune cells that attack the nervous system and create MS symptoms.
Nerve Cell Damage May Be Evident Years Before Symptoms Are Recognized Damage to nerve cells appears to occur years before people with multiple sclerosis (MS) begin to show symptoms and is evident in a likely biomarker, Researchers found raised levels of neurofilament light chain (NfL), a protein associated with nerve cell damage, in blood samples collected six years before individuals were diagnosed with MS.
https://multiplesclerosisnewstoday.com/news-posts/2019/09/10/ectrims2019-talk-284-serum-neurofilament-light-chain-as-a-presymptomatic-biomarker-in-multiple-sclerosis/?utm_source=Multiple+Sclerosis&utm_campaign=f71a72aa64-RSS_US_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_b5fb7a3dae-f71a72aa64-7131015
**Comcast News discusses Multiple Sclerosis
http://www.foxnews.com/opinion/2014/02/25/yes-have-ms-my-life-with-multiple-sclerosis/
**MS Invincibles Article
My Cognitive Reality-written by: Chris Noellert-Group Leader
The cognitive effects of MS are often over looked and under discussed with our MS Doctors. For MS patients
like me it's a good news/bad news reality. Our brains aren't displayed with a cane, wheel chair or scooter. Having
invisible symptoms on the outside might make us feel and seem well "stuck on stupid" an MS term we use.
A tolerable acceptance strategy I use is laughing instead of crying for myself. Often non-MS folks seem to
nervously chime in with your laughter. Kind of like a Lucille Ball moment!
I had a Neuropschye evaluation last year. Boy was that a big pill to swallow! I felt like I was back in grade
school knowing full well that I was failing the test! It was undeniably a pathetic episode for me!! Having been a
smart person in my previous life(BMS-before MS) has brought my brain dysfunction right to the surface. That
was a true test of my denial skills. I kept waiting for his unavoidable facial reaction.
The Visual:
The Neuropschye standing up with all my evaluation papers in tow saying(in slow motion) "I think we're done
here. Your mental capacity is...well so... deteriorated"!! Making peace with that reality was very, very difficult
for me! I decided in that moment that laughing instead of crying about myself will be my chosen coping
method ! Screw everyone who doesn't understand what it's like to have your brain power slowly diminish!! At
least when I do the on-line brain scramble games I'm by myself and can marinate in the reality of how things
are changing for me.
On a brighter side, I must remember that I'm not dying from MS. A problem free life is promised to no one!
Everyone faces challenges in their life. (physical, emotional, medical, relationships, financial, etc) Looks like MS
is the challenge I got! Why?
It must be that I had to learn this particular lesson. Imagine if you had no challenges in your life! No challenging
experiences to learn from! Imagine if your spirit life form kept sending you back with the same issue to deal
with?
As someone who believes that in each lifetime you must learn how to handle certain challenges, I don't know
but for me one lifetime of this MS torture is enough. Is this my new life form with MS because I didn’t get the l
lesson the last time round?
Who knows? My MS life is what it is!
Maybe I should throw out of my "pity stew" and start over. You know, add the good ingredients this life has
given to me.
I'm privileged to learn that my perspective on my MS "Life Challenge" strikes a chord with other MSer’s. I've
spent a lot of time trying to rationalize my illness. This chosen perspective makes sense to me and has helped me
to understand the "WHY?" factor.
I've always felt that everything that happens in your life happens for a reason and a purpose. You just need to
figure that out for yourself.
What has helped me the most is starting my own local MS Support group last November. We call ourselves the
MS Invincibles located in in Northern Nevada. Our members are all heroes in their own way. I wanted to
create this support group that operated the attitude of "OK, now what?" after our MS diagnosis.
How I developed my group format came from attending other MS local support group meetings over the past
few years since I was diagnosed with MS in 2003. The reality was I found myself always more depressed
when the meeting ended.
Here's the meeting scene:
MSer's sitting around a large table discussing how their MS illness has ruined their life and about all the
sacrifices they've had to make "Hi my name is ______ and I have MS. It was like attending a pity
party...without any balloons! It was NOT OK with me to proceed in life with that kind of attitude.
My attitude was more like "Yes I have this MS disease and now I want to move forward with my life please”.
I'm very particular and guarded with the MS Invincibles group members. I made a pledge to only add members
who are positive and ready to move on with their life! I have 28 full time members now who are fully
committed to the principles of our group mission . I invite featured speakers to each monthly meeting. These
presenters all offer a valuable service to our members. No drug reps. pitching their medications are allowed!
The speakers are representatives of companies who offer valuable MS services and resources that assist our
members in living their best life with MS.
I also created an MS Invincibles resource web site (msinvincibles.org) in January 2012. The site is easy to
navigate through and is loaded with information links ranging in 28 MS topic categories. The site features
information and answers to many MS questions.
This is a chosen path for me. Helping others with MS! When I help others it gives me a responsibility to others
and takes me out of my own MS box. I feel great about what I have created and knowing it helps other
MSer's like me!
Jack Osborne Diagnosed With MS
http://www.people.com/people/article/0,,20604748,00.html
Risk of Cancer Lower in MS Patients
http://www.medicalnewstoday.com/releases/246945.php
The Progression of MS Unaffected By Active Ingredient of Cannabis
http://www.medicalnewstoday.com/releases/246684.php
Jonah Chan - Final
Http://myelinrepair.org/documents/Jonah_Chan_Final.pdfMarijuana May Relieve MS Symptoms
http://www.medicalnewstoday.com/articles/245424.php
Growth Factor In Stem Cell May Spur Recovery From MS
http://www.medicalnewstoday.com/releases/245660.php
Stem Cell Therapy Shows Prospects for Severe Neurological Diseases
http://www.medicalnewstoday.com/releases/246464.php