Community Resources
In this section you'll find valuable resource
links to various groups and service providers.
Their programs are specifically designed for
MS patients like you. From social MS
networking, MS pier groups, Chat Rooms,
Social Networks that will keep you connected to the worldwide MS community.
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MS Invincibles-Reno
Group Leader: Chris Noellert 775-560-1215
2nd Wednesday each month 12:45-2:30
South Reno Library
15650A Wedge Parkway 775-851-5190
http://www.msinvincibles.org
http://www.facebook.com/pages/msinvincibles
MS Rockettes- Sparks
Group Leader Mary 772-3404
2nd Tuesday of each month 10:00-12:00
Center for Independent Living
999 Pyramid Way
The Rocky Mountain Multiple Sclerosis Center is a patient- and family-centered nonprofit organization that provides a comprehensive and integrated wellness approach to MS and related diseases, life-changing support services, and cutting-edge research.
MS ID Card The Rocky Mountain Multiple Sclerosis Center offers MS ID cards as a service to those who live with multiple sclerosis. The card lists vital information on one side and common MS symptoms on the back.
Open PDF Name Tag form below
What is iConquerMS™?
iConquerMS™ is a new initiative by and for people living with MS. It puts you at the center of research in the fight against multiple sclerosis.
https://www.iconquerms.org/
https://www.iconquerms.org/#sthash.GRR6fuwm.dpuf
The ACP Repository is an open-access resource of blood-derived samples and data from over 3200 subjects for the study of MS and other conditions.
Interview with
Robert McBurney CEO of the Accelerated Cure Project
https://www.youtube.com/watch?v=jubXDTWIUBM&list=PLWVq_YaRWZvG-yhZmoMzWFa4U3s2p3o1V&index=2
ACP Repository One of ACP’s goals is to remove the bottlenecks that slow research into better understanding the causes and mechanisms of MS and related disorders. One area of focus includes providing researchers with the high-quality and well-annotated biospecimens they need to conduct their research, and then encouraging them to share those relevant study findings with the rest of the MS research community.
MS Blueprint
Online Program by Biogen Helps Patients Live Happier
https://multiplesclerosisnewstoday.com/2014/10/20/ms-blueprint-online-program-by-biogen-helps-patients-live-happier/
ms Blueprint is a program designed to encourage MS patients to turn their attention to daily activities that enhance their emotional and mental state. The newly launched MS Blueprint program assists patients and caregivers in setting positive and realistic goals to help you set, create, and attain a more enjoyable life by focusing on the positive and seeking the most out of each day. Whatever the goal is that you are aiming for whether you are trying to eat healthier or you want to visit every museum in your city!
ms Blueprint program provides you with a creative tool and may help you attain it.
https://www.msblueprint.com/about-program/about-program.html
Get the help you need
Get ongoing care from a person who loves you!
Who is eligible for FreedomCare? Funded by Medicaid, we want to make sure understanding your eligibility* is simple. You are likely eligible if you… Currently have Medicaid Live in NY, NV, MO, PA, AZ, IN, GA, CT, CO or OR Need help with day-to-day activities
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Caregivers for MS Patients We Are Here to Help YOU!!! Specialized Care Management Patty Shelton 209-681-7242 www.specializedcaremanagement.com Vista Angels 800 365-4189 Consumers Direct Home Care 786-4999 Home "n" Stead 337-5333 Comfort Keepers 770-2000 ________________________________ |
What is Northern Nevada Disability Access??
It connects individuals with disabilities/health conditions within Northern Nevada.
NNVDA is resource directory/referral network
The NNVDA website is a free resource directory is intended for:
- Persons with disabilities or health-related issues (diabetes, cancer, pulmonary/respiratory, heart issues, etc).
- Parents with special needs children and young adults
- Caretakers, advocates, friends, families, service providers.
https://mail.google.com/mail/u/0/#inbox/158be6449d630fa7
You Can LIVE FULLY WITH MS Everything we do at Can Do MS is driven by one simple belief: you are more than your MS. With a vision, a mission and core values rooted in the legacy and belief of our founder Jimmie Heuga that everyone living with MS has the power to live full lives, Can Do MS is the start of a whole new way of thinking about and living with multiple sclerosis.
Weekly Webinar's with IMPT MS Topics
http://www.mscando.org/about-can-do-ms/
All About MS
http://www.allaboutms.com/multiple-sclerosis-products.htm
American Brain Foundation
CureBrainDisease.org
Multiple Sclerosis.net
MS patient resources including symptoms, diagnosis, treatment, community, expert answers, daily articles
https://multiplesclerosis.net/register/
NNVDA is resource directory/referral network
Members will receive a weekly email with a collection of stories/topics written by MS patients.
https://multiplesclerosis.net/weekly/161130.html
Also available are forums with other MS patients discussing a range of topics
https://multiplesclerosis.net/forums/MS Connection
http://www.msconnection.org/Discussions/f572/t46375/tp1/July-Discussion-of-the-Month-Mobility-Accessibility
Nancy Davis Foundation for MS
Center Without Walls:
http://erasems.org
Shop to erase MS
merchant purchase donations
http://shop.erasems.org/collections/may-campaign-collection
Latest News
http://erasems.org/news/category/latest_news/
Cleveland Clinic MS Research-Services
http://my.clevelandclinic.org/multiple_sclerosis_center/default.aspx
*MS Therapies
Physical Therapy
Align
Sabrina Summers
185 Cadillac Pl, Reno, NV 89509
775-360-5564
https://alignptgroup.com/
Back in Motion PT Incontinence Products & Services
Rhonda Fiorillo
10789 Double R Blvd #100, Reno 89521
775.746.2206
https://www.backinmotion.net/contact
MSing Link
Gretchen Hawley PT, DPT, MSCS
Live your best life with MS Programs, exercise, life style she offers on youtube & Spotify
https://www.doctorgretchenhawley.com/podcasts/the-msing-link
Cogentix-
Melissa Auclair
916-870-6498
PTNS Urgent® PC Neuromodulation
Non-drug, non-surgical treatment for overactive bladder
https://www.cogentixmedical.com/health-care-professionals/products/urgent-pc
*Disability Communities
Essential Accessibility
combines web accessibility compliance with assistive technology to ensure no one with a disability is left behind. It free to download and easy to use.
https://www.essentialaccessibility.com/why-ea/
Disaboom
Disaboom is a Disability Resource Website and is a premier online community dedicated to improving the way individuals with disabilities or functional limitations to live an active life
http://vcelkaj.wixsite.com/disaboom
*Other MS Services
Everyday Health
http://www.everydayhealth.com/multiple-sclerosis-basics.aspx
First Turn Foundation
http://www.turnfirst.org/
Friends of MS Reno
(775) 323-3311
http://www.facebook.com/pages/Friends-of-The-National-Multiple-Sclerosis-
society/149356231774253
Health Line
http://www.healthline.com
Life Coach
Beverly Marshall
775-219-9782
www.BeverlyMarshall.com
Dr. McDougall
Medical Information Resource
http://www.drmcdougall.com/med_ms.html
Medicine Net (web MD for Multiple Sclerosis)
http://search.medicinenet.com/search/search_results/default.aspx?Searchwhat=1&
query=multiple+sclerosis&I1=+
Remsa Ambulance
Mitch Nowicki
775-858-5700
http://www.remsa-cf.com/index.html
*Mobility Equipment
Medtech Services Inc.
Richard Graver
775-826-2022
www.medtech-services.com
*Resource Services
Northern Nevada Disability Association
http://nnvdaccess.com/author/nnvda/
Rocky Mountain MS Center (Utah)
Cortnee Roman-Nurse Practicer
http://www.mscenter.org
Regional Transportation Commission -RTC
Sue Sherman
775-348-5438
http://www.rtcwashoe.com
Tai Chi Instructor-Reno
Mary Ann Jones
taichihealthy@gmail.com
TurnFirst Foundation
http://www.facebook.com/pages/TurnFirst-Foundation-Helping-People-Newly-Diagnosed
-with-Multiple-Sclerosis/15602976948
WEBMD
http://www.webmd.com/search/search_results/default.aspx?query=multiple%20sclerosis
*Online Support Groups
Daily Strength
http://www.dailystrength.org/home
http://www.facebook.com/DailyStrength
Patients Like Me
http://www.patientslikeme.com
Stu's News & Review
http://www.msviewsandrelatednews.blogspot.com
*Pharmaceutical Patient Resources
Acthar GEL
Patient Information
www.acthar.com
(888) 435-2284
AMPYRA Patient Support Resources
(APSS)
(888) 881-1918
www.ampyra.com
AVONEX -
MS ActiveSource
(800) 456-2255
www.avonex.com
Aubagio (Oral)
https://www.aubagio.com
Gilenya (Oral)
Patient Support
(877) 408-4974
www.gilenya.com
Rebif
MS LifeLines
(877) 447-3243
www.MSLifeLines.com
Tecfidera (Oral)
MS ActiveSource
(800) 456-2255
http://www.tecfidera.com/?utm_source=google&utm_medium=cpc&utm_campaign=Branded+Full+Patient&utm_term=tecfidera&utm_content=Information|mkwid|s1jUJOj77_dc|pcrid|25491086227
Tysabri
TOUCH Program
(800) 456-2255
www.tysabri.com